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n) n. the removal of a tube after intubation of the larynx or trachea) and a big step for Sir William, who only last night was scaring the pants off his parents with high oxygen intake, alternating lung collapse and very fussy behavior (granted I would be even more agitated if I had to actually miss a meal!) But today is a new day and one that we are REJOICING in. Mark and I prayed that desperation prayer last night...you know the one where you actually confess that you are powerless and need serious help...the ones that God loves because it actually means we are at the end of ourselves and are seeking His will and not our own...that ONE. We also cried out to hold our baby (I mean "really" hold our baby...not this touching-his-head-and-toes-pretending-stuff) and guess what...GOD ANSWERED. We had 30 sweet minutes with our son.
How it all went down...
About 3:30 this morning, Will thought it might be fun to pull out his breathing tube (he's been threatening it for awhile but decided to do it when Nurse Practitioner Nancy was on duty, knowing she's a sucker for reckless behavior) and when he did, she decided to give the C-Pap machine a try (still gives oxygen, but allows him to do the work) He's been up for the challenge for 8 hours now and doing well. Given the two days he had prior to this, there is still a chance that he will tire and have to go back to more assistance. But for now, we are all in Extubation Jubilation!!!
Also, a pediatric pulmonologist will be stopping by to see him today to see if we can get better understanding of why his lungs collapse sometimes and why, mysteriously, it will alternate sides. Please pray for wisdom for him and our team of doctors.
Once again we are reminded of God's faithfulness and are praising Him for one more day with William, along with our answered prayer to hold him. We are also thanking Him for all of you who have also diligently prayed and held him from afar.
-Dana
William I am so excited that your mom and dad got to really hold you. What fun!!!!!!!!!! You keep us all on our toes all the time. One day you are going to get to hear the story of how God took such good care of you. Keep up the breathing on your own. It is exciting what you can co with God's help. PRAISE GOD
ReplyDeleteI love you. MOMO
Oh that is just wonderful little William. You are breathing like a champ. I am praying for you sweet boy.
ReplyDeleteThese pictures are so sweet. Your Mom and Dad have been longing to hold you. They are grinning from ear to ear. As MOMO said, just keep up the good work on the breathing. It must feel good to have that tube out of your throat. Hooray! God just keeps reminding all of us to trust Him with you. Love, Grampy and Grandmommy
ReplyDeleteLook at those precious chubby little cheeks! Just like your cousins Catherine and Alexandra when they were first born.
ReplyDeleteWhat a precious blessing. God does not give us a spirit of fear, but of power. We are praying His power will continue to manifest in you and help those lungs to work the way they need to. We love you so much.
Stephen, Jennifer, Rylan, Catherine, and Alexandra
Woohoo!!! So glad you got to hold your precious one! God is so good. Praying that he does not have to go back and the ventilator and in time (quick time) he'll come off the CPAP as well. Love you guys and praying for you daily.
ReplyDeleteJerad and Heather
Praising God for you three, today!! I'm so encouraged by your ability to trust in God through all of this and will continue to pray for William's complete healing!
ReplyDeleteThe pictures of you and Will made me cry. I am so happy for you! We will continue to pray for him and for you both!
ReplyDeleteMaria H
THRILLED that you were able to hold that precious bundle of a little man! I think your touch and body warmth will do WONDERS for his recovery and strength. Prayers that you will get more and more HOLD time each day until you can hold him all the way HOME! Thanks for the pics and update!
ReplyDeleteTARA
Thinking about all of you every day and praying for peace, strength, and FAITH. You look SO happy holding little Will.
ReplyDeleteHow awesome! Rejoicing with you. :)
ReplyDeleteSweet little William,
ReplyDeleteWe are praying for you and asking God to make you big and strong so your mom & dad can take you home and hold you all the time!! Jesus is the great healer and - with great faith - we are all asking Him to heal you...today! You are strong in the Lord, Will!
Scott & Jill
William,
ReplyDeleteYou have the best Mommy in the world! We are praying daily for you and are praising God, along with your family, that you are getting better each day.
Stephanie Dean Ehlers
yay!! jubilation indeed! keep going will!
ReplyDeletexo,
jenny, greg and cal